More Christmas Pictures

Christmas Disaster!!

We celebrated our family Christmas party December 23 of this year at the Le&@cy in Ottawa Lake, Michigan. It was a wonderful party until the family started getting into the hot tub. It first started with the youngest in the hot tub, then work it way up by size. Even Don was terrible affected by his short time in this hot tub.
As family began getting their swimming suits on and stepping into the tub, there were complains of the smell and the water looking funny. With in a short time the youngest in the water started uncontrollable crying. Followed by complains from the older girls. Their skin
hurting and their private area burning.
You can see from the new Christmas Pig Towel that I wrapped Georgia in, there were way to many chemicals in the hot tub water. This was a gift she had opened this morning.
Even after a shower at there and a baking soda bath at home, Georgia still had signs that there was way too many chemicals in that hot tub. My husband would not let me take pictures of his private, but he too has lots to complain about. Georgia wore one of those diaper bathing suits. This horrible rash was around her waist and of the diaper and the legs of the diaper. She did not sleep well last night at all.
You can see from the new Christmas Pig Towel that I wrapped Georgia in, there were way to many chemicals in the hot tub water. This was a gift she had opened this morning.
Even after a shower at there and a baking soda bath at home, Georgia still had signs that there was way too many chemicals in that hot tub. My husband would not let me take pictures of his private, but he too has lots to complain about. Georgia wore one of those diaper bathing suits. This horrible rash was around her waist and of the diaper and the legs of the diaper. She did not sleep well last night at all.
I didn't get in the hot tub, but I did hold Georgia and helped shower her off. Look what happened to my shirt. You can not tell me that there was not way, way too many chemical of what ever kind in that hot tub.

The holy man

First you pick out Godparents.

Don't they together look sweet, innocent and holy?




The baby had water poured over his head and
then we bit the baby's fingers.








Mark is thinking of food.
Case is wondering how much longer
Laura would rather be nursing then giving a bottle
Stephie wants to hold the baby.




It's all over. Church photo time.
Seconds later the baby started crying.

Merry Christmas

Hope this Christmas morning finds you with a big smile upon your face. The chance to hold and hug someone you love. In a room filled with smiles and laughter.
May this coming New Year you find the inner child in you. Brave and happy to wear something no one else in the room would wear and loving it.

Happy Birthday Avery!

Oh, no, I'm a terrible Aunt. I almost forgot someone's 1st. Birthday today!!

Thank you for your prayers

Hooray!! Hooray! Hooray! Tom does NOT have aplastic anemia. On Friday Tom is getting more blood testing and an intense look at his platelets, but the doctor believes at this time nothing looks terrible or life threatening to him.

Let’s celebrate!!!

Felbatol

As most of you know trying to control Tommy epilepsy was impossible. We would give him medicine and the seizures would stop or slow up for only a brief period of time, only to return full force, seizures were daily occurrences. Often Thomas was hospitalized to change drugs. During a hospital stay, when we thought we had his seizures well controlled, he was hooked to an EEG for more then 24 hours. Throughout that EEG, it was well documented that there were only 3 times went he went more that 8 minutes between his seizures, most of the time he was having one seizure after another. How is he to learn anything with seizures relentlessly interrupting his concentration?
After trying every anti-convulsive on the market, we even tried ACTH steroid injections. Nothing worked well, until 1993 when the drug Felbatol was introduced. Two days after starting to take this drug, Thomas seizures dropped and his awareness and responsiveness increased. He became more aware of his surroundings, more responsive, started showing likes and dislikes. It was wonderful until….
The following spring/summer, warnings were flying about this drug, Felbatol and it causing aplastic anemia, where your body stops producing new blood cells and caused people to die. Doctors were advised that their patients should stop taking the drug. I begged, I pleaded to keep my son on this drug. I wanted quality of live over quantity. Most doctors believed that the constant seizures would take his life anyways.
Fourteen years later Tom is still taking Felbatol for his seizures with great achievements and very few seizures; we believe without that drug, he wouldn’t be here today. But there are too few people on the drug to know about its long term use and its fatality rate or to identify those factors. So it is not known whether or not the risk of developing aplastic anemia changes with its use.
This is where I need your prayers, lately Tommy has been going through stages, were he’ll go for a few days to a week or more and bruise easy, be pale in color, sleepy and look terrible and then he gets better. This are signs that he maybe developing aplastic anemia. On the 10 of December we are seeing a blood specialist to have this check out. Let’s just hope it’s an enlarge liver or something treatable.