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You can see from the new Christmas Pig Towel that I wrapped Georgia in, there were way to many chemicals in the hot tub water. This was a gift she had opened this morning.
You can see from the new Christmas Pig Towel that I wrapped Georgia in, there were way to many chemicals in the hot tub water. This was a gift she had opened this morning.




As most of you know trying to control Tommy epilepsy was impossible. We would give him medicine and the seizures would stop or slow up for only a brief period of time, only to return full force, seizures were daily occurrences. Often Thomas was hospitalized to change drugs. During a hospital stay, when we thought we had his seizures well controlled, he was hooked to an EEG for more then 24 hours. Throughout that EEG, it was well documented that there were only 3 times went he went more that 8 minutes between his seizures, most of the time he was having one seizure after another. How is he to learn anything with seizures relentlessly interrupting his concentration?
After trying every anti-convulsive on the market, we even tried ACTH steroid injections. Nothing worked well, until 1993 when the drug Felbatol was introduced. Two days after starting to take this drug, Thomas seizures dropped and his awareness and responsiveness increased. He became more aware of his surroundings, more responsive, started showing likes and dislikes. It was wonderful until….
The following spring/summer, warnings were flying about this drug, Felbatol and it causing aplastic anemia, where your body stops producing new blood cells and caused people to die. Doctors were advised that their patients should stop taking the drug. I begged, I pleaded to keep my son on this drug. I wanted quality of live over quantity. Most doctors believed that the constant seizures would take his life anyways.
Fourteen years later Tom is still taking Felbatol for his seizures with great achievements and very few seizures; we believe without that drug, he wouldn’t be here today. But there are too few people on the drug to know about its long term use and its fatality rate or to identify those factors. So it is not known whether or not the risk of developing aplastic anemia changes with its use.
This is where I need your prayers, lately Tommy has been going through stages, were he’ll go for a few days to a week or more and bruise easy, be pale in color, sleepy and look terrible and then he gets better. This are signs that he maybe developing aplastic anemia. On the 10 of December we are seeing a blood specialist to have this check out. Let’s just hope it’s an enlarge liver or something treatable.


They both at this age had long attention spans. G sat at the table and colored in her book while I French braided her hair. I am not fast at that, this took a while and she never complained or fussed.





My niece is out of town with her family. Today I get a call to say my niece got to try on her clothes, got her hair done and got to meet the woman that is going to play her mom in the Tar&et commercial. We thought she was just going to be some kid in the background, but it sounds like she going to be the foremost kid in the commercial. Filming is tomorrow. Break a leg, Sweetie!!!
Our weekend went past so fast
Holly joined us for dinner on SundaySomeone who lives only about a ½ hour away, flew here instead of driving.
Flying in was much more exciting for both her and us.
It was fun watching her check the airplane and take off.
When once you have tasted flight, you will forever walk the earth with your eyes turned skyward, for there you have been, and there you will always long to return.

When we ordered the turducken, we asked about the stuffing that is normally between each layer of meat. I was told they don’t use stuffing and it would not be made that way. Friday at the store, they apologized for the person in charge of making it, not only added stuffing between each layer he also added a small pork roast inside the boned chicken, that was inside the boned duck, that was inside the boned turkey. So the store gave us a huge discount off the turducken. We ended up getting more of what we wanted for a cheaper price!!